Monday, March 31, 2014

Guest Host for Turn it Up Tuesdays

Welcome to the 28th week of Turn It Up Tuesday! Thanks so much to my fellow hosts and our March team and to all of you for making every week so successful! And welcome our April team this week!

As you may know, Turn It Up Tuesdays is all about being happy, excited, energetic...and having fun! Link up your favorite posts and meet some awesome bloggers in return! Link up your funny stories, DIY posts, recipes, mommy moments -- anything at all, as long as it is family-friendly. We want to laugh, be entertained, be inspired, and have a good time!

Welcome the lovely ladies of Turn It Up Tuesday!

TUT hosts

And welcome our awesome guest hosts!TUT April co-hosts

Interested in co-hosting? If you are interested, please complete this form. Monthly co-hosts will be chosen on a first come first-serve basis. We're now accepting co-hosts for October & November. Co-hosts will receive free ad space on Epic Mommy Adventures for 60 days!

Here are the Featured posts from last week!

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Cathy chose Cheese cake with marshmallows and chocolate chips from Something Sweet. "I can't wait to try this recipe! I love cheesecake and s'mores so I know I'm going to love this!"

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Cathy also chose Chocolate Mousse in Chocolate Shell from Foodista. "I love how easy this recipe is, yet the results of the finished product are impressive! Serving these at my next party!"

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Kimberly chose Surprise! Welcome to the Netflix Stream Team! from Adventures of a Jayhawk Mommy. "I am so jealous of Denise's membership on the Netflix Stream Team. I had never heard of it and am trying to figure out how to join. My family is already a fan of Netflix, but even more so after reading this post."

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Kimberly also chose 7 Things Mothers Do That Are Taken for Granted from The Brown Girl With Long Hair. "Courtney's list of 7 things is on the money. As I read 'We're constantly in demand', my 6-year-old walked into the room and interrupted me to ask for something. Bingo!"

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April chose Why You Should Vote for Candace Cameron Bure on DWTS... from Some of the Best Things in Life are Mistakes. "As clothes get skimpier, there's a star willing to help the rest of us moms out there show that beauty is more than wearing nothing. Amy makes a convincing case on why we should vote for Candace Cameron on Dancing with the Stars."

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April chose Hello Neurosis, How I've Missed You from Meltdowns, Breakdowns, and Time-outs. "Sometimes we want to believe that we have full control of our emotions, but because we are women, there are times when we just don't. And that's ok! Here's one mom's adventure in weaning from breastfeeding and the after effects!"

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Melissa chose 7 Ways To Nurture Your Child's Happiness from LadyBlogger. "I'm always a fan of pieces that talk about children's happiness, because to me it's so important. But Bonnie took it a step farther in her piece: she talked about being happy in your own life, and reflecting it back to your kids. I think this is spot-on advice, and sometimes we forget that if we just let our children watch others experience happiness, they usually will figure out how to achieve it for themselves!"

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Melissa also chose A Time to Mourn and a Time to Dance from Vashti Quiroz-Vega's Blog. "Vashti's is always one of my favorite blogs to visit because she has a magical way of mixing words and finding a topic that draws you in completely. So it was with Time to Mourn, Time to Dance. I found myself just dying for the next chapter and still waiting for more! Her writing challenges you to create some of the mystery for yourself while still being a satisfying meal. For fiction lovers, this is the place to be!"

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Jessica chose Learning to not compare from What's Up Fagans? "The post reminded me of a family member who always compared others and was so miserable with herself. I made the same recommendation to enjoy what you have rather than saying "I wish" or "If only". I loved the Stephen Covey reference to the post since 7 Habits is my all time fave book! Awesome post and awesome advice for anyone looking to live better with themselves :)."

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Jessica also chose Getting Growing from Happy Pretty Blog. "I'm growing a garden again after a one year hiatus. Her experiences reminded me of "stupid" directions and decided to go rogue myself! Loved her greenhouse idea of using a mason jar! I may need to do that for a couple of seeds I'm trying to grow too!"

Can Negative People Change

Stacey chose Can People Change? from Darlene Nemeth. "This is such a great post! I would also have to say yes, but I think the most important key to the change is to recognize the negativity. I used to always see the glass as have empty, until I finally realized that something needed to change and that was me."

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Stacey chose Deviled Eggs from Organizer by Day. "These are just so cute and such a perfect Easter delight. Our family loves deviled eggs during Spring and Summer cookouts. I may just have to try these."

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Angel chose Pizza Casserole from Adventures of a Jayhawk Mommy. "This pizza casserole is awesome! Who doesn't love PIZZA."

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Angel also chose Carrot Cake Cookies are a Easter Treat from Foodista. "Carrot cake sandwich cookies from Cooking Classy are a sweet Easter treat. Inspired by classic carrot cake, two fluffy carrot cookies are smashed with cream cheese frosting."

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Natasha chose Being a happy mother by valuing it from What's Up Fagans? "Katelyn's post is completely beautiful. I don't have twins, but I understand the drastic transition into motherhood and learning to find the value in the experience. I admire her for admitting that she loves being a mom but doesn't always enjoy it. I love my son, as she loves her children, but motherhood is definitely hard!"

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Natasha also chose Same Sex Marriage from British Mum USA. "Raymanda, you have touched my heart, kept my mind open (it was already open but opened further), and I have stopped and listened. That was your goal with this post - and you have achieved it. Even if only one person stopped and listened, you have achieved your goal. Wishing you the best!"

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The most with the most clicks is What I Learned From Getting My Heart Broken... from Twist & Sprinkle.

If you were featured above, feel free to share the badge below with pride on your blog or website!

Epic Mommy Adventures
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And the Best of the Best is...

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Why You Should Vote for Candace Cameron Bure on DWTS... from Some of the Best Things in Life are Mistakes

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Same Sex Marriage from British Mum USA

As the Best of the Best, you win free ad space on Epic Mommy Adventures for 60 days! Please showcase the badge below with pride on your blog!

Please send an e-mail to Natasha at 1EpicMommy @ gmail.com and she will provide you with all the details!

 
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So now that you've seen the Featured and the Best of the Best and met our hosts and co-hosts,

let's get started!

  • Show some love to your hosts and co-hosts simply by following them on social media and leaving a comment so they can follow you back.
  • Link up as many posts as you'd like! The more, the merrier!
  • Check out some of the other posts and make some new friends!

Grab the button below and showcase on your sidebar! Invite your fellow bloggers to join the fun!

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Link up your posts, make some friends, and earn the chance to be featured or become the Best of the Best on Turn It Up Tuesdays! We will feature the favorite posts each week!
  Interested in reading all of the Featured Posts on Turn It Up Tuesdays? Or want to know if your post was featured before we go live next week? Then, check out my Pinterest board! Follow Natasha Peter's board Featured on Turn It Up Tuesdays! on Pinterest.

Wednesday, March 26, 2014

Come Chat with Jane

Tonight I will be chatting live on IFAA's Facebook page with another of our Systemically Connected Blog Leaders, she also happens to be a friend of mine :)

I hope to see you their! The details can be found on the poster below.


In the meantime you can check out Jane's Blog Here:  Blackbird at Night 

                                                           Facebook

                                                     Twitter

                                                       Google+

You can also check out the posts from the blog leaders for Systemically Connected at the link above. 


If you are a blogger and you write about Rheumatoid Arthritis (RA), Psoriatic Arthritis (PsA), Ankylosing Spondylitis (AS), Sjogren's Syndrome (SS), Systemic Lupus Erythematosus
(SLE), Still's Disease, Juvenile Arthritis (JA), and Undifferentiated Connective
Tissue Disease (MCTD/UCTD)

Are you interested in being a Blog Leader for the International Foundation for Autoimmune Arthritis and Systemically Connected the official Blog of IFAA?

or would you like to Blog for us for special events like WAAD14 


If you answered yes! Please email me at: lorna@ifautoimmunearthritis.org for more information.



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Friday, March 21, 2014

A day in my life as an Autoimmune Arthritis Patient (WAAD 2014 Blog Carnival Post1)

This year's World Autoimmune Arthritis Days theme is "A day in the life of an Autoimmune Arthritis Patient." 

(The site is now open for registration click the link above.)

So since I'm the one looking after the Blog Carnival for World Autoimmune Arthritis Day this year I created the deadline for the first of several posts leading up to the big day. You would think I would be prepared and have this post ready to go but NO! as I sit here today I'm typing this on the fly (is that still a term?)

P.S. If you want to sign up to blog for WAAD there's still time click here

I'm unable to focus my eyes this has been a problem for me the last few days, I'm contemplating wearing sunglasses in the house due to the light bothering me. My nose is red (insert random Rudolph joke here.) If you haven't figured it out by now I failed at my attempt to not catch the virus that invaded my husband's body several weeks ago. He has recovered but I'm back to the routine of being up all night coughing.

Is that part of my day in the life? Yes, yes it is! It's one of my days in the life since due to Autoimmune Arthritis my immune system is compromised and I catch everything over and over again.

When this is gone (please be soon!) Things will go back to a "normal" day in my life, okay now I'm stuck! This is where I began, random thoughts going around in my head, then I have a great idea, then boom it's gone again!

Brain fog, another part of my life everyday. I forget things a lot! I make lists and more lists then lists for my lists.

I could try to tell you about my day but everyday is different, I don't have a "normal" routine anymore. The last time I was able to work outside of the home was more than ten years ago. These days I do volunteer work at home as mentioned above and a million times before on here :)

My sleep pattern is non existent,  if I'm lucky I fall asleep about 4 or 5 am and wake up about 8am. I try to fall back to sleep but once I'm awake it's impossible, I'm still tired but can't sleep. I can't explain the fatigue I feel I'm always tired from the time I get up until the time I go to bed but yet I can't sleep. 

After that I take my morning medication, try to eat something, check my e-mail and start the day.

I think it's time to switch to pictures I'm having an extremely hard time writing this post, I'm not sure if it's due to the lack of sleep or the fact that this virus is just wiping me out things just seem more difficult right now.  

So I will try to describe my life a little more in pictures.

Volunteering during WAAD13


Walking through the falls on one of my good days summer 2013



Things that help me?








Things that make me happy :)


I read on a site to make a table close to you of some of your favorite things so if you're too sick to get out of bed you have something to cheer you up. Here are a few of mine.

The card and the small book were given to me by one of my closest friends many years ago, when I was feeling down last week I was going through a box and found them :) 



 

Pain is a part of my daily life whether due to joint or muscle pain, as I've mentioned in previous posts I will need surgery on my feet. I still have ongoing pain from my knee replacement surgery and subsequent  surgery to try and repair the damage done to the nerve.

I also deal with Migraines, Sinus headaches and cluster headaches which have multiple causes related to any and all of my Autoimmune Arthritis Diseases. I deal with ongoing pain in my mouth due to the breakdown of my teeth from Sjogren's Syndrome which was caused by dry mouth. 
*****WARNING GRAPHIC PHOTOS*****

After the nerve repair surgery


Wrist fusion Surgery



So as you can see in my life there are both good and bad things. I have learned in 26 years to find a balance somehow. Everyday I try to do accomplish one thing no matter how small. Today this is a big thing for me since I'm so tired I can barely function ! :) Now I'm going to collapse on the couch and watch some NASCAR! Only two more months before I can sit on a tailgate and watch some dirt track racing! 



Over the next few days you can check out the other entries on the WAAD Facebook page as well as the Systemically Connected site.




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Saturday, March 15, 2014

One day you're up, the next you're down.

The title of this post sums up life for me and almost everyone I am in contact with lately. This winter feels like it has dragged on forever although there have been brief glimpses of spring. 
Yesterday was one of those days, it was 50 degrees outside, we headed out for a long well long for me walk. I think I managed just over a mile.

 It felt great to breathe in the fresh air, to watch the snow slowly melt away, to feel the sun on my face. For as long as I can remember walking has been a source of relief for me when my stress level has been high and right now my stress level is HIGH!



The last time I posted I was waiting on a brace to be made for my issues foot drop. Here is the end result of that.





I have had differing opinions on if since I have had it, since I have already had surgery on the nerve one doctor thinks it's unlikely the brace will do anything for me (I tend to agree).
However I'm supposed to wear it before the doctor who prescribed it will do surgery on my feet.

I had a Rheumatologist appointment it went well. I'm lucky to have a great doctor who listens to me. He started me on a new medication to treat ongoing pain issues which has been debated to be Fibro but more than likely Sjogren's related issues. 

My husband has been sick for the better part of two weeks now, he rarely gets sick. He had to miss work for a couple of days. Anyone who knows him knows he NEVER does that. I have been avoiding him like the plague other than to get him what he needs. Since my immune system likes to attack me I catch everything, I am still not fully recovered from the virus that sent me to the emergency room the last time. I am having sinus issues and am still fatigued on top of the fatigue I deal with as it is due to Autoimmune Arthritis.

He finally went back to work only to be told his position was being eliminated, he will still be employed but his position will be gone. What will they be doing with him? They don't know! They have no plan, they just eliminated positions with no plans for their people. It's relieving to know they care about their people. (Sarcasm intended)

Our house has been another issue, we had water coming from (what you would think was the roof) but no! It was dripping inside a light fixture, the people we bought the house from two years ago installed the A/C in the attic of all places. We had water dripping into one of the bedrooms and the office coming from the duct work in the ceiling that was fun to clean up.

That was a couple of weeks ago, a few days ago we had a basement full of water! We were told this house had never had a drop of water in it ever!
We spent an entire day/night moving everything out. We were lucky that nothing important was ruined. That put my husband's sickness back a day and put me into a flare.

Our shed was also flooded along with everything inside it.




Today we are back to 30 degrees again, tomorrow and the rest of next week it's supposed to be cold and snow again.

 I don't know when we will see another warm day again I'm glad I didn't waste an opportunity to enjoy the beautiful day no matter how bad I've been feeling. These days come too far in between. 

I don't want you to think geez this lady is a downer! I'm going to quit reading her blog! 


Not everything in life is negative, we know what the problems are, they will get fixed. The weather will improve. I will go out and like everything else in life I will take it one step at a time. These are just a few bumps in the road, I will always have Autoimmune Arthritis, my doctors are great I have a good treatment plan right now. I have an online community who supports me and I can support and I am looking forward to WAAD14. (More to come on that)

I hope life is treating you well, today since it's too cold we are going out for a drive. Maybe we will find something exciting, maybe not but life's too short for me to spend it on the couch.




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