Monday, September 9, 2013

Invisible Illness Week 30 Things Meme


1. The illness I live with is: Rheumatoid Arthritis, Lupus, Sjogren's Raynauds, Migraines, I will stop here or I will be typing all night.
2. I was diagnosed with it in the year: 1988
3. But I had symptoms since: Age 8
4. The biggest adjustment I’ve had to make is: Slowing down, losing some of my independence
5. Most people assume: They know what I have, how it feels and how to fix me
6. The hardest part about mornings are: Waking up after not sleeping all night
7. My favorite medical TV show is: Monday Mornings
8. A gadget I couldn’t live without is: My Laptop
9. The hardest part about nights are: Trying to sleep
10. Each day I take __ pills & vitamins. (No comments, please) 12
11. Regarding alternative treatments I: Have tried a couple and have an open mind
12. If I had to choose between an invisible illness or visible I would choose: I accept what I have and try to educate others in the hope one day we won't have to worry about what other people think.
13. Regarding working and career: I miss the feeling of accomplishment and the paycheck and socialization.
14. People would be surprised to know: How capable I am, when you are ill for so long people seem to think you are no longer useful.
15. The hardest thing to accept about my new reality has been: How lonely and isolating life can be.
16. Something I never thought I could do with my illness that I did was: Volunteer
17. The commercials about my illness: Misrepresent the majority of patients
18. Something I really miss doing since I was diagnosed is: Dance
19. It was really hard to have to give up: Dancing, Socializing
20. A new hobby I have taken up since my diagnosis is: Movies, Blogging
21. If I could have one day of feeling normal again I would: Travel
22. My illness has taught me: Patience
23. Want to know a secret? One thing people say that gets under my skin is: I have Arthritis too!
24. But I love it when people: Ask me how I'm feeling and mean it.
25. My favorite motto, scripture, quote that gets me through tough times is: 
Do what you can, where you are, with what you have. –Teddy Roosevelt
26. When someone is diagnosed I’d like to tell them: Never give up.
27. Something that has surprised me about living with an illness is: People don't want to hear about it.
28. The nicest thing someone did for me when I wasn’t feeling well was: Bring me a get well book
29. I’m involved with Invisible Illness Week because: It is an important cause. We all deserve the right to be visible.
30. The fact that you read this list makes me feel: Appreciative.





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