Tuesday, September 10, 2013

International Foundation for Autoimmune Arthritis news, ACR and what you can do.

I mentioned a couple of posts ago I had news about the International Autoimmune Arthritis Movement. Here it is! IAAM has become the International Foundation for Autoimmune Arthritis. That said, our mission will expand to include patient centered research, support, and legislation and advocacy.
IAAM will become a part of IFAA. We hope you will join our new Facebook page here.

Second, right now two of the IFAA/IAAM founders are in Washington as well as one of the volunteers, taking part the American College of Rheumatology's, Advocates for Arthritis 2013 Summit. IF you go to the Facebook page you can follow their progress through pictures.




Photo: And we're off!
Are YOU ready to join the team of advocates in Washington D.C?  IFAA'er Co-Founders Tami Brown and Kelly Conway, along with Volunteer Therese Freeman Humphrey, have made their way to Capitol Hill and are telling their stories to the Congressional Representatives in their states/territories. NOW IT'S YOUR TURN!

Please see former posts from yesterday (on this page) that explain the three issues they are highlighting for the office visits (which are approximately 10-20 minutes depending on how busy each office is with other type of visits).  What is YOUR story?  Why are these issues important to YOU and what can you tell them to personalize the issues?

Think about YOUR STORY and stay tuned as we walk you through the DC experience...concluding with YOU sending YOUR story to YOUR REPRESENTATIVE in DC!






If you live in the United States you can participate virtually. 

Follow this link www.rheumatology.org/actioncenter  

Here's one of the issues this year from the ACR website

 "H.R. 460 would allow more patients to access biologic drugs by limiting the patient cost-sharing burden that can be imposed for these treatments. It would limit cost sharing for treatments placed in a specialty drug tier (typically Tier IV or higher) to the highest cost-sharing a plan requires for drugs in its most expensive non-preferred brand drug tier (typically Tier III)."


The ACR has a pre written email that you can personalize. You can also find your Representative and email them, or if you prefer print out and send them a letter.





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1 comment:

  1. I just liked the new Facebook page. Thank you for hosting Fun Friday!

    ReplyDelete

Thanks for stopping by! I appreciate all of your comments. I try to answer all of them. Sometimes life takes over and I can't get to it right away. Please don't be offended. I would love for you to leave your blog address or social media links so I can follow you or contact you. Thanks again for taking the time to be a part of my life, you are awesome!