Friday, April 12, 2013

WEGO Health Activist Writers Challenge Day 12 (What has surprised me since becoming a patient?)

Today's topic is, What have you learned about being a patient that has surprised you the most?

Number 1. How little people know about these diseases, when I was diagnosed you could include me in that list.

Number 2. How isolating these diseases are.

Number 3. How strong I can be, it's amazing how strong a person can be when forced to be.

Number 4. How hard it is to navigate the world when you have a disability.

Number 5. How little some doctors, nurses and others in the medical field know about Chronic illness and Chronic pain.

Number 6. How much it costs to go to the doctor, how much medication costs, hospital stays, surgeries, x-rays, mri's CT scans, ultrasounds, blood tests

The last thing I would say is, it could happen to anyone, there is no known cause. There is no cure. 

Children get diagnosed everyday with Juvenile idiopathic arthritis, or what a lot of people know as Juvenile Rheumatoid Arthritis According to the Rheumatoid Patient Foundation  website, there are 1.6 - 2 million people in the United States alone living with Rheumatoid Arthritis.  

The statistics from the Lupus Foundation website show there are 1.5 americans living with Lupus,  and 5 millions worldwide with a form of Lupus most are diagnosed, between the ages of 15-44. 

Let's move on to Sjogren's according to the Sjogren's Syndrome Foundation there is close to four million people diagnosed right now with this disease.

I don't know about you, but I find all of this information surprising even more surprising that more is not known about them.


  1. It's shocking what people don't know about chronic disease. Sjogren's and Raynauds are real mysteries to people.

    I admire everyone who took on the challenge to write a post every day for a month. I am finding that twice a week is a comfortable pace, though some posts are better than others. I'm with you on #1 of your points though by now I could go on and on haha

    1. lol I could go on and on too! I usually only write 2 posts a week so this is quite a challenge for me. As you can see by my latest one, some days the posts are as short as possible.

      I think Sjogren's and Raynauds are a mystery to me as well, and I live with them :)

  2. I am so glad I live in Canada where all medical care is covered. I also have extended health care through my job so my prescriptions and most of my physiotherapy and massages are paid for too.


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