Today's question, activism goals. What we would do if we had no physical, time or financial limitations? My goal like I'm sure everyone else's would be is to find a cure. Barring that it is awareness of the daily struggle people dealing with chronic illness go through. With no health limitations, time, or financial issues to worry about I would be able to travel from place to place and let people know exactly what our day to day lives are really like. I would pay for television time and correct the misinformation heard there.
The possibilities are endless! I could put billboards up, attend conferences, find a designer to create comfortable, stylish clothing without zippers and buttons so we don't have to wear pajamas much of the time. Go to Congress and fight for the right for people in chronic pain to have their pain properly controlled without feeling like a criminal, drug addict or not getting treatment at all. I would fly overseas looking for the latest and best tools to help our conditions. Hire a team of the best researchers to look at the root causes of these diseases.
I would be able to go from home to home to see people who otherwise have no one. The world is not set up for sick people. We are the invisible forgotten ones. I found out after my knee replacement, there are so many places I couldn't get in or out of easily because they were not handicap accessible. Many people don't think about it, until they or a loved one are in that situation.
Cleaning your house, cooking meals all of that is extremely difficult if not impossible for some people with a Chronic illness. In certain areas, like mine it's almost impossible to get help. I am lucky my husband helps with the cooking and my future daughter in law and son come and do the heavy cleaning for me on a weekly basis.
We need to find a better way so we can all live in this world regardless of our ability or lack thereof. Life is hard enough when you are sick, you shouldn't have to worry about how you are going to get through each day.
Cue the Barenaked Ladies, "If I had a Million Dollars"
The song has been running through my head since I started writing this post :)