Living with RA, Sjogren's, Raynauds and now Lupus, on top of Migraines, GERD and various other issues is a daunting task. You wake up each day (providing you have slept at all) not knowing what the next challenge is going to be. Can I get out of bed? Can I walk? What parts will cooperate today? You get up because you have to, the world goes on with or without you. You put on your brave face. (I have perfected mine) and get on with the day.
The question is how do you keep the disease from taking over? For me, the answer has changed over the years and changes on a daily basis. I can't plan anything since I don't know how I will be feeling. We say "Yes" to family occasions or we may buy tickets to attend a concert or whatever the case may be. All of this comes with the added words "it depends on how I'm feeling."
Part of not letting the disease take over is taking care of myself, learning my limits, resting when I need to, drinking enough water and taking my medication on a regular basis. I have had to learn to ask for help (that has been tough for me) I'm very stubborn. I think if you take a look at many other people who blog about RA, Lupus etc, you will find this is a common theme. It took me almost 25 years to get to this point, but hey at least I'm here now. I've learned to conserve my energy for things that matter the most to me like spending time with my husband, my children, grandchildren, taking some time to enjoy life. Recent events in my life reminded me life is short and a wise women in my life told me "it's your time to dance."
When I was first diagnosed I didn't have time to think about being sick, I was still working and a young mother, it was a difficult time for me, I was exhausted physically and emotionally. I made it through each day because I had to, one day I will write more on that. I had to stop working outside of the home at least 10 years ago when my health went into a downhill spiral and I had one surgery after another.
Nowadays, I keep busy online with my blog, reading other peoples blogs. I have come to love doing that and met many great people. I do what I can to advocate for Autoimmune Arthritis/Disease and I stay updated on the latest research and treatments. I play games on Facebook or read posts on Twitter when I get overwhelmed, sometimes the last thing I want to think about or read about is illnesses. I do things that keep me occupied and that I enjoy. Music is another distraction for me, it can change my mood in seconds.
When the weather heats up,we go on day trips or just sit outside and enjoy the warm weather. I feel so much better in the summertime, winter is a bad time for those of is in cold climates with Autoimmune Arthritis/Disease.
I know I have said this before but I will continue to say, I have these diseases they do not have me. No matter how sick I get I will continue to find new ways to live my life each day. I have done it for 25 years and will continue for the next 25 plus.